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Publié par | Troubador Publishing Ltd |
Date de parution | 28 mars 2014 |
Nombre de lectures | 0 |
EAN13 | 9781783068449 |
Langue | English |
Informations légales : prix de location à la page 0,0150€. Cette information est donnée uniquement à titre indicatif conformément à la législation en vigueur.
Extrait
NO TIME FOR CANCER
Inspire Yourself to Survive Mouth, Head and Neck Cancer
Carol Dunstone Ann Bennett
Copyright 2014 Carol Dunstone Ann Bennett
The moral right of the author has been asserted.
Apart from any fair dealing for the purposes of research or private study, or criticism or review, as permitted under the Copyright, Designs and Patents Act 1988, this publication may only be reproduced, stored or transmitted, in any form or by any means, with the prior permission in writing of the publishers, or in the case of reprographic reproduction in accordance with the terms of licences issued by the Copyright Licensing Agency. Enquiries concerning reproduction outside those terms should be sent to the publishers.
Matador
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Email: books@troubador.co.uk
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ISBN 978-1783068-449
British Library Cataloguing in Publication Data.
A catalogue record for this book is available from the British Library.
Matador is an imprint of Troubador Publishing Ltd
For Ann
ACKNOWLEDGMENTS
Carol and Ann would like to thank everyone who helped them throughout their journeys from diagnosis to recovery and their continuing journey. They especially thank their families for their constant support.
Carol s husband, children and sisters. Ann s husband, children and sister.
They also thank their dear friends for their support throughout, those who contributed recipes and all those named specialists who contributed articles. And they give special thanks to their consultants and medical teams.
They would also like to thank all those (many people) involved with setting up and supporting the Dunstone Bennett Complementary Centre (DB) - the management teams, therapists and receptionists, including all the Trustees for our charity Facefax: Anne Hicks, Gordon and Sophie Chandler, Pauline Gibbings, Jean Patchesa, Joyce Turner and Bill Dearns
Finally they would like to thank all those involved in helping to produce this book - Tony Boullemier, Inga Sutton, Brian Dunstone (Bunny), Elsa Christie, Michael Bennett, Vicky Smith, Sue Brooks and Christine Owens. Elke Pollard and Roger Wilkin.
They would also like to express special thanks to Macmillan, the Freemasons of Northamptonshire, Huntingdonshire and Buckinghamshire, Nigella Lawson and Professor Nick Stafford for their interest and support.
INTRODUCTION
T HE A UTHORS
Carol Dunstone is a ceramic artist and had a full-time career, designing, painting and producing ceramics, until cancer of the mouth was diagnosed in 1998.
She lives in Northamptonshire with her husband Brian, known to everyone as Bunny. She is the mother of three children, Alastair, Clare and James, and has seven grandchildren.
Her ceramic art continues and she works at home in her own studio along with Bunny who is a sculptor. Her interests include painting, reading, gardening, walking the dog and family life.
Carol was making a good recovery from her illness when, in 2001, she helped set up Facefax, a support group for head and neck cancer patients. There she met Ann Bennett and together they discussed how they could use their own experiences to collate information and provide tips and suitable cooking recipes for fellow patients and their families.
Three years ago, Carol and Ann set up a therapy centre for all cancer patients and supporters. Carol now teaches art at the DB.
Ann Bennett, born in Wiltshire, now lives in Northampton. She is married to Michael and has a thirty-eight-year-old-son, Mark. She also has an extended family, Vicky Golding and husband Oscar, their two children and Vicky s brother, Max and partner Rumi. Ann s interests include entertainment, travel and reading.
For many years Ann worked in the business world and in advertising, but in 1993 decided to pursue her interest in complementary therapies and trained as an Advanced Reiki practitioner. She became a full member with the National Federation of Spiritual Healers and qualified as an Advanced Hypnotherapist and Hypno-Healer. She has incorporated all three therapies within the book and for the Dunstone Bennett Complementary Centre. Ann was fifty-six when diagnosed with mouth cancer in 2004. Eight months after her operation she met Carol when she attended her first Facefax meeting.
After much encouragement, both Carol and Ann have updated their journeys, continuing from 2006 until now, with many new contributions. Much progress has been made in the passing years, which they hope will highlight a very definite and positive outlook for their readers with this new book.
FOREWORD
PROFESSOR STAFFORD
To be diagnosed with cancer is a devastating event in anyone s life. As a Head and Neck Surgeon, I have always got the impression that patients regard tumours of the upper airway and digestive tract as the most difficult to deal with. Not only do they have a cancer, but they have something which is very close to their very being and which is likely to cause cosmetic, swallowing or voice disruption. Unfortunately, none of these can be easily disguised from friends and relatives in the same way a breast or colon cancer can.
There are many books written about head and neck cancer, but most of them are written by members of the medical profession and deal objectively with how the physician should manage the tumour. However, it is really only the patient who knows the best way to cope with the diagnosis and how best to live with it. Carol and Ann have written about such issues in a way that will be very helpful to others undergoing the treatment and problems that they experienced themselves. Knowledge is no substitute for experience and this book provides a summary of all the thoughts and events a person with oral cavity cancer is going to go through during their treatment. It can be thought of as a frontline battle tale as opposed to a manual of military strategy.
I would whole-heartedly recommend this book to anyone with an interest, either personal or general, in this area of oncology.
Chapter 1
HOW FACEFAX STARTED
Being told you have cancer or that your cancer has returned or can t be cured, can leave you feeling shocked, upset and very isolated. There are so many feelings to deal with and it can be a very confusing and distressing time.
The Macmillan Cancer Line
The Facefax support group was first established in Northampton in June 2001 when it became apparent that many patients with mouth, head and neck cancer were not getting enough support on their journeys towards recovery.
When Carol Dunstone mentioned to her consultant Mr Clive Pratt that there seemed to be a lack of immediate contact and backup for patients like herself, he agreed. He suggested she meet another patient named Valerie Johal who was recovering from mouth cancer. When she and Carol met, they found their experiences gave them a close bond.
They began meeting other patients about once a month at Northampton General Hospital, with Sister Jane Bradley acting as facilitator. Their aim was to provide information and support to patients and carers, and as the group grew, it was registered as a charity, The Facefax Association.
The association s main aim is to increase public and professional awareness of these cancers.
Anne Hicks now acts as the Facefax facilitator. She gives up much of her time listening to patients problems and is always full of advice. The group regards her as indispensable.
A U NIQUE L INK
By Anne Hicks, Maxillofacial Clinical Nurse Specialist, Northampton General Hospital
My patients are all undergoing treatment for head and neck cancer and since the diagnosis usually comes out of the blue, it is liable to leave them in a complete state of shock. But I will be present at the point of diagnosis and will be their point of contact in the hospital throughout their treatment.
I ensure that my patients and their loved ones get information about their planned treatment and offer emotional support as required. I encourage them to ask questions and discuss the life-changing experience they are having.
Verbal information is supported by a written information pack and given over two or three forty-five minute consultations. It is important that patients and their loved ones understand all the treatment options and give their informed consent. Every patient will require different levels of information given at their own pace. As doctors and nurses, we know that too much information given too soon after a diagnosis of cancer will not be understood, leading to problems later in the recovery process.
I manage all wounds following surgery and take part in the review process in conjunction with my medical colleagues. Consequently, the relationship with my patients will hopefully last at least five years.
I am chairman of Facefax and also facilitate the Facefax support group meetings held in Northampton. Only a small percentage of my patients attend regularly, but those who do are so full of energy and enthusiasm.
Chapter 2
CAROL S STORY:MY DIARY
I NTRODUCTION
No time for cancer. Where have all those years gone? I was diagnosed with mouth cancer fifteen years ago, when I underwent twelve hours of surgery, followed by six weeks of radiation treatment and here I am now beginning another journey.
I am writing a second book with my dear friend and co-author, Ann Bennett. By popular request, this book is to follow where we left off six years ago after the publication of our first book called TRILOGY .
We can t influence the past, so maybe we can influence the future. We must continue to go forward and learn. As one gets older, the essence of friendship is ever more intense with the knowledge of either moving on.
I m tracing my footsteps back to 2005, reawakening memories, both happy and joyful, but also sad. This has been quite cathartic for me.
In 2005, I already had three grandchildren,