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Straightforward Publishing - Doreen Jarrett

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77 pages

English

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Parkinson's, or the onset of Parkinson's, is a very stressful time for those unfortunate to suffer it. Quite often guidance on the subject is conflicting and unclear. This Revised UPDATED Edition of Explaining Parkinson's deals with Parkinson's in a very sensitive and clear way and will be of great assistance and comfort to those who read it. The book gives advice on techniques for coping with the diagnosis, finding the right doctors, diets and, overall, dealing with the condition and the attendant stress.

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Médecine

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Publié par	Straightforward Publishing
Date de parution	25 août 2020
Nombre de lectures	0
EAN13	9781913776299
Langue	English

Informations légales : prix de location à la page 0,0300€. Cette information est donnée uniquement à titre indicatif conformément à la législation en vigueur.

Extrait

EXPLAINING PARKINSON S
Doreen Jarrett
Editor: Roger Sproston
Emerald Guides
Emerald Guides
Straightforward Co Ltd 2020
All rights reserved. No part of this publication may be reproduced in a retrieval system or transmitted by any means, electronic or mechanical, photocopying or otherwise, without the prior permission of the copyright holders.
ISBN: 978-1-913342-53-1 ePUB ISBN: 978-1-913776-29-9 Kindle ISBN: 978-1-913776-19-0
Printed by 4edge www.4edge.co.uk
Cover design by BW Studio Derby
Whilst every effort has been made to ensure that the information contained within this book is correct at the time of going to press, the author and publisher can take no responsibility for any errors and omissions contained within.
Explaining Parkinson s
Contents
Introduction
Chapter 1. Underlying Causes of Parkinson s
The Brain
Free Radicals and Anti-Oxidants
Anti-oxidants
Genetics
Parkinson s and Inheritance Factors
Young-onset Parkinson s Disease
Other Factors
Low Levels of Estrogen
Caffeine and Nicotine
Diet and Nutrition
Age Related Factors
Chapter 2. The Diagnosis of Parkinson s Disease
The main characteristics of Parkinson s
Tremor
Rigidity
Bradykinesia
Balance
The process of elimination
Carrying Out the Diagnosis
Assessing the Symptom
Consider all the Possible Diagnosis
Chapter 3. Medication and Parkinson s
Medications
Drugs that Replace Dopamine
Enzyme Inhibitors
Dopamine Agonists
Anticholinergic Drugs
Amantadine
Using medications safely
Chapter 4. Surgery and Ongoing Research
Surgery for Parkinson s Disease
Deep Brain Stimulation
Lesioning-Pallidotomy and Thalamotomy
Cell Implants
Stem Cells from Embryos
Growth Factors
Chapter 5. Finding the Right GP/Consultant
Chapter 6. Combating Depression
Parkinson s and Depression
Factors Contributing to Depression
The Importance of Working Towards An Acceptance of Parkinson s
The Importance of Support Groups
Chapter 7. Diet and Parkinson s Disease
Eating Well With Parkinson s
Underweight
Dishes and Cutlery
Advice on Eating and Swallowing Food
Tips on Easy Swallowing
Puree Diets
A Sample Eating Plan
Parkinson s Medication and the Interaction with Food
Controlling Nausea
Vitamins and Minerals
Chapter 8. Exercise and Parkinson s
The Benefits of Exercise
Putting Together an Exercise Plan
Aerobic Fitness
Improving Muscle Strength
Flexibility
Starting Your Exercises
Chapter 9. Employment and Parkinson s
Discrimination in the workplace
Looking for a job when you have Parkinson s
Positive discrimination
Telling a manager about your diagnosis
Telling Colleagues
What are reasonable adjustments?
Making a request for reasonable adjustments
Workplace adjustment agreements
Taking time off for medical appointments and treatments
Sick leave
Returning to work
Access to work programme
Discrimination
Ending work
Redundancy
Redeployment
Retiring from work
Insurance
Working and caring for someone with Parkinson s
Flexible working hours
Getting support
Time off in an emergency
Chapter 10. Welfare Benefits and Employment
How to claim benefits-Qualifying for benefits
Where to claim
Making a claim
Challenging a decision
Care and mobility Benefits
Attendance allowance
Personal Independence Payment
Disability living allowance
Benefits if unable to work
Statutory sick pay
Employment and Support Allowance (ESA)
Carers needs-Carer s allowance
Retirement-The Pension Service
State pension
Pension credit
Help for people on a low income-Income Support
Cold weather payments
Help with housing costs
Support for mortgage interest
Housing benefit
Help with Council Tax
Help with NHS costs-NHS benefits
NHS low income scheme
Benefits in hospital
Useful addresses
Chapter 11. Living and Coping With Parkinson s
General Advice
Therapies for Parkinson s Disease
Physiotherapy
Occupational Therapy
Speech and Language Therapists
Driving and Parkinson s
Parkinson s Medication and Driving
Mobility Centres and Driving Assessment
Priority parking and The Blue Badge Scheme
Car Insurance and Parkinson s
Adaptations to Vehicles for people With Parkinson s
Dropped Kerbs
Chapter 12. People Who Care for Parkinson s Sufferers
Definition of a Carer
Providing Care to a Person With Parkinson s
Talking to Health Professionals
The Carers Register
Time Off From Caring
Carers Assessment
Carers and Employment Rights
Telling Your Employer About Your Role as a Carer
Statutory Rights for Carers
Websites for Carers
Useful Addresses
Appendix one.
Medication Logs
Index
Introduction
A good deal has been written about Parkinson s over the years, and there are many avenues through which information about the condition can be obtained. Throughout this book, which has been revised and updated (2020) to include findings new to Parkinson s and also rights in the workplace, I will also be discussing Parkinson s and the impact of COVID 19 (see below) and referring to various organisations that play a major role in providing invaluable information about Parkinson s disease.
My own background is non-medical so it should be understood from the outset that what you read in this book is in no way based on medical opinion, it is just a product of research and personal experiences. My personal experiences have involved my partner s relatives and very close friends of mine and I have been deeply involved in all aspects of Parkinson s from initial diagnosis to living with Parkinson s and medication and ongoing needs and support.
In addition to this, I myself was diagnosed mistakenly with Parkinson s disease by my doctor (although I hasten to add this was an initial diagnosis and he referred me to a specialist who, after a few months of tests, and a deep brain scan, informed me that I did not in fact have Parkinson s). What this little episode did was take me through the initial phase of trauma and then acceptance that I might have Parkinson s disease. It was the culmination of all these experiences that prompted me, with the aid of my partner, to write this book.
What is Parkinson s?
Parkinson s is (one of) the most common disorders of the nervous system. Muscle movements are affected with the main symptoms being tremors, stiffening of the muscles and, overall, slower movement patterns. Parkinson s was first identified in 1817 by Doctor James Parkinson, working in London. Although the condition has been in existence for a very long time, it is now more prevalent because of the aging population, the fact that people are living longer. It is recognised most frequently in people of 6o or over, although it is also prevalent in some younger people.
Doctors are now far more aware of Parkinson s and the advances in drugs available to treat them have been very significant, particularly in the last decade. Research nowadays is focussed on slowing and preventing the progression of the condition and there will be corresponding advances in the types of medication available.
COVID-19 and Parkinson s
COVID-19, short for coronavirus disease 2019, is an infection caused by severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2). SARS-CoV-2 is a newly identified pathogen that has not previously been seen in humans and is highly contagious. Though it belongs to the same category of viruses as SARS coronavirus (SARS-CoV) and influenza viruses, SARS-CoV-2 is a different strain with its own characteristics. COVID-19 was first reported in Wuhan, China, in December 2019, and the outbreak has spread quickly across the world, prompting the World Health Organization (WHO) to declare COVID-19 a pandemic.
Because COVID-19 is a new virus, nobody has prior immunity to it, meaning the entire human population is prone to infection. COVID-19 is primarily spread via respiratory droplets when people cough or sneeze. Scientists have yet to understand how easily and sustainably the disease can spread among people. Based on available evidence, researchers do not think that airborne spread is a major transmission route.
Common symptoms of COVID-19 begin two to 14 days after exposure. They include fever, tiredness, and dry cough. Other symptoms include sputum production, shortness of breath, sore throat, headache, myalgia (muscle pain) or arthralgia (joint pain), chills, vomiting, and nasal congestion. Less frequent symptoms include diarrhea, hemoptysis (coughing up blood from the respiratory tract), and conjunctival congestion.
Most of these symptoms are usually mild, and about 80% of people who get the virus will typically recover without needing any special treatment. However, about 1 in 6 patients become seriously ill and develop breathing difficulties.
What general preventive measures should people take?
The following simple preventive measures can help minimize the spread of COVID-19:
Wash your hands often with soap, lathering both the front and the back of the hands and fingers for at least 15 to 20 seconds. If soap is not available, use a hand sanitizer that contains at least 60% alcohol. The European Centre for Disease Prevention and Control produced a poster detailing effective handwashing.
Avoid close contact with someone who is ill. (Maintain a distance of at least 6 feet, or 1.8 meters).
Stay at home if you are sick.
Use a tissue to cover your mouth and nose if you cough or sneeze and dispose of it properly afterward.
Disinfect surfaces and objects you touch frequently.
Avoid touching your eyes, nose, and mouth with unwashed hands.
Are people with Parkinson s disease more at risk?
Parkinson s disease itself does not increase the risk of catching COVID-19. However, older adults are at the highest risk of developing a severe case of COVID-19, and because most patients with Parkinson s disease are typically older, they should take extra precautions to protect themselves, follo