We Walk , livre ebook

Cornell University Press - F. Lutz Amy S.

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196 pages

English

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In this collection of beautiful and raw essays, Amy S. F. Lutz writes openly about her experience-the positive and the negative-as a mother of a now twenty-one-year-old son with severe autism. Lutz's human emotion drives through each page and challenges commonly held ideas that define autism either as a disease or as neurodiversity. We Walk is inspired by her own questions: What is the place of intellectually and developmentally disabled people in society? What responsibilities do we, as citizens and human beings, have to one another? Who should decide for those who cannot decide for themselves? What is the meaning of religion to someone with no abstract language? Exploring these questions, We Walk directly-and humanly-examines social issues such as inclusion, religion, therapeutics, and friendship through the lens of severe autism. In a world where public perception of autism is largely shaped by the "quirky geniuses" featured on television shows like The Big Bang Theory and The Good Doctor, We Walk demands that we center our debates about this disorder on those who are most affected by its impacts.

Sujets

Memoir

Child

Informations

Publié par	Cornell University Press
Date de parution	15 octobre 2020
Nombre de lectures	0
EAN13	9781501751417
Langue	English
Poids de l'ouvrage	1 Mo

Informations légales : prix de location à la page 0,7500€. Cette information est donnée uniquement à titre indicatif conformément à la législation en vigueur.

Extrait

We Walk

A volume in the series The Culture and Politics of Health Care Work Edited by Suzanne Gordon and Sioban Nelson

For a list of books in the series, visit our website at cornellpress.cornell.edu.

We Walk Life with Severe Autism

Amy S. F. Lutz

ILR Press an imprint of Cornell University Press Ithaca and London

All rights reserved. Except for brief quotations in a review, this book, or parts thereof, must not be reproduced in any form without permission in writing from the publisher. For information, address Cornell University Press, Sage House, 512 East State Street, Ithaca, New York 14850. Visit our website at cornellpress.cornell.edu.

First published 2020 by Cornell University Press

Printed in the United States of America

Library of Congress CataloginginPublication Data

Names: Lutz, Amy S. F., 1970– author. Title: We walk : life with severe autism / Amy S. F. Lutz. Description: Ithaca [New York] : ILR Press, an imprint of Cornell University Press, 2020. | Series: The culture and politics of health care work | Includes bibliographical references. Identiﬁers: LCCN 2020011042 (print) | LCCN 2020011043 (ebook) | ISBN 9781501751394 (cloth) | ISBN 9781501751400 (epub) | ISBN 9781501751417 (pdf) Subjects: LCSH: Autism—Social aspects. | Autistic people—Family relationships. | Parents of autistic children. Classiﬁcation: LCC RC553.A88 L88 2020 (print) | LCC RC553.A88 (ebook) | DDC 616.85/882—dc23 LC record available at https://lccn.loc.gov/2020011042 LC ebook record available at https://lccn.loc.gov/2020011043

For Andy, Jonah, Erika, Hilary, Aaron, and Gretchen

Understanding across difference is both possible and necessary. —Iris Marion Young

Preface ix Acknowledgments xv 1 We Walk 1 2 Physical Guidance 18 3 Answers and Questions 35 4 The Next Time 49 5 Just Say Yes 65 6 All Possible Spaces 83 7 Praesidalism 97 8The Child Who Does Not Know How to Ask 115 9 Baseline 139 Notes 153 Bibliography 167

Contents

Preface

began writing about Jonah, the oldest of my ﬁve children, in I 2007.The Big Bang Theory had recently launched, with its implicitly Aspergerian quirky genius protagonist, and the newly formed Autistic Self Advocacy Network had successfully pressured the NYU Child Study Center to end its “Ransom Notes” awareness campaign because its comparison of autism to a kidnapper por trayed the disorder in too negative a light. To me, at home with a severely autistic eightyearold who would be hospitalized for most of the following year to stabilize his aggressive and selfinjuriousbehaviors, the ads actually seemed pretty benign: “We have your son. We will make sure he will no longer be able to care for himself or interact socially as long as he lives. This is only the beginning . . . 1 Autism.” Today, the National Council on Severe Autism (of which I’m proud to be a founding board member) offers a deﬁnition of se vere autism:

Those who satisfy the diagnostic criteria of the DSM5, and who, by virtue of any combination of cognitive and functional im pairments, require continuous or nearcontinuous, lifelong ser vices, supports, and supervision. Individuals in this category are