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New Harbinger Publications - Marguerite Manteau-Rao

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153 pages

English

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Mind

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Publié par	New Harbinger Publications
Date de parution	02 janvier 2016
Nombre de lectures	0
EAN13	9781626251595
Langue	English

Informations légales : prix de location à la page 0,0000€. Cette information est donnée uniquement à titre indicatif conformément à la législation en vigueur.

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“This book is an outstanding contribution to dementia care. Marguerite’s experience, understanding, and compassion shine through every page. She has done a stunning job of presenting the complexities of dementia and how to be a care partner with the support of a mindfulness approach. Organized and inspiring, anyone dealing with dementia will be immensely grateful for this book, surely destined to become a classic in the field.”
— Olivia Ames Hoblitzelle , author of Ten Thousand Joys and Ten Thousand Sorrows
“I highly recommend this exquisitely crafted, inspiring guide brimming with practical wisdom that flows from the depths of the author’s authentic mindfulness practice and insightful dementia care-partnering experiences. The skillful dementia care principles seamlessly interwoven with mindfulness practices offer readers an opening in the heart and mind for extraordinary possibilities through the power of caring presence. This is a must-read for all who envision and feel called to actualize a ‘radical new way for being more fully present for ourselves, as well as for the person with dementia.’”
— Maribeth Gallagher, DNP, FAAN , director of the dementia program at Hospice of the Valley in Scottsdale, AZ, mindfulness-based stress reduction (MBSR) practitioner and teacher, and mindfulness-based dementia care teacher
“With this clear and compelling guide to mindfulness practices, Marguerite Manteau-Rao fills an important void in the education of those who support people living with dementia. It is only by learning to be fully present that supportive partners can transcend communication barriers, understand distress, and create a pathway for their own well-being as well.”
— G. Allen Power, MD, FACP , author of Dementia Beyond Drugs and Dementia Beyond Disease
“Marguerite has designed a bridge for us to cross into a new era of understanding in dementia care where conscious caregiving and practices for cultivating awareness, compassion, and mindfulness are the new normal and standard of care. She beautifully illustrates the power of mindfulness practice to transmute caregiver confusion and dis-ease, which can be as challenging and debilitating as, if not more so than, dementia itself.”
—Laura E. Rice-Oeschger, LMSW , coordinator of the Dementia Wellness Initiative at Michigan Alzheimer’s Disease Center, University of Michigan Department of Neurology
“ Caring for a Loved One with Dementia offers new hope that today’s dementia caregiver can find a sense of peace in the difficult journey of dementia caregiving. Manteau-Rao does a masterful job introducing mindfulness, a practice that will be new to most caregivers. Her book provides real-world examples of where mindfulness can make an impact, as well as concrete suggestions for practicing mindfulness regularly. Caregivers who incorporate her lessons into their life will enjoy long-lasting benefits not just for themselves, but also for their care recipient.”
—Angela Taylor , director of programs at Lewy Body Dementia Association
“Marguerite has beautifully matched her own experience as a caregiver for a loved one with dementia with her mindfulness knowledge. The result is a book that meets the practical and emotional needs of family caregivers challenged by dementia. We dementia caregivers know all about stress, fatigue, grief, and sadness. This book opens us up to the possibility of moving beyond that by clearing our minds, opening our hearts, and partnering with our loved ones.”
—Robin Riddle , CEO of Brain Support Network, Parkinson’s caregiver program facilitator at Stanford University, and primary caregiver for her late father with progressive supranuclear palsy
“Marguerite Manteau-Rao’s mindfulness guide for caregivers helps outline the ‘sweet spot’ between the practice of mindfulness and caring for a loved one with dementia.”
— Elizabeth Edgerly, PhD , chief program officer of the Alzheimer’s Association, Northern California and Northern Nevada Chapter
“In this beautiful book, Marguerite applies her experience and compassion to gently guide a care partner as they learn to transform grief and loss into wisdom with loving-kindness. This book is the necessary platform for building a new perspective on changes we frequently face in the final phases of life. Each chapter provides another link in the lifeline that prevents drowning in our own thoughts and emotions.”
— Catherine Madison, MD , medical director at Ray Dolby Brain Health Center in San Francisco, CA
“Marguerite Manteau-Rao has written an essential guide for caregivers supporting someone living with a dementia-related illness. A generous and skillful teacher, Marguerite shares practices that are beneficial and healing. Caring for a Loved One with Dementia is certain to help ease a seemingly impossible journey.”
— Roy Remer , director of the Guest House and volunteer programs at Zen Hospice Project in San Francisco, CA, and teacher of mindfulness practices for professional and informal caregivers

Publisher’s Note
This publication is designed to provide accurate and authoritative information in regard to the subject matter covered. It is sold with the understanding that the publisher is not engaged in rendering psychological, financial, legal, or other professional services. If expert assistance or counseling is needed, the services of a competent professional should be sought.
“Informal Practice: Self-Compassion Break” is adapted from the work of Kristin Neff.
Distributed in Canada by Raincoast Books
Copyright © 2016 by Marguerite Manteau-RaoNew Harbinger Publications, Inc.5674 Shattuck AvenueOakland, CA 94609www.newharbinger.com
Cover design by Amy Shoup
Acquired by Melissa Valentine
Edited by Ken Knabb
All Rights Reserved
Library of Congress Cataloging-in-Publication Data
Names: Manteau-Rao, Marguerite, author.
Title: Caring for a loved one with dementia : a mindfulness-based guide for
reducing stress and making the best of your journey together / Marguerite
Manteau-Rao.
Description: Oakland, CA : New Harbinger Publications, Inc., 2016. | Includes
bibliographical references.
Identifiers: LCCN 2015039308| ISBN 9781626251571 (paperback) | ISBN
9781626251588 (pdf e-book) | ISBN 9781626251595 (epub)
Subjects: LCSH: Dementia--Patients--Care. | Dementia--Patients--Family
relationships. | Caregivers. | Stress management. | BISAC: FAMILY &
RELATIONSHIPS / Eldercare. | HEALTH & FITNESS / Diseases / Alzheimer’s &
Dementia. | BODY, MIND & SPIRIT / Meditation.
Classification: LCC RC521 .M365 2016 | DDC 616.8/3--dc23 LC record available at http://lccn.loc.gov/2015039308
To my mother, Mimi, whose journey through Alzheimer’s has inspired me to do this work.
Contents
Foreword
—Kevin Barrows, MD
Introduction
Chapter 1: Dementia Care, Stress, and Mindfulness
What Is Dementia?
Not One But Many Dementias
Neurodegenerative Dementias
Mild Cognitive Impairment (MCI)
Reversible Dementias
Why You Need to Know
Treating Reversible Causes
Getting the Right Meds
Understanding Distress and How to Respond
Connecting with Other Caregivers Going Through a Similar Journey
Planning for the Long Term
Participating in Clinical Trials
Who Can Help You?
Primary Care Providers
Neurologist
Psychiatrist
Gerontologist, Geriatric Social Worker, or Geriatric Care Manager
The Extraordinary Stress of Dementia Care
Dementia Care Challenges
Dementia Caregiver Stress
Caregiving Stress and Your Health
Why Mindfulness?
Mindfulness to Reduce Your Stress
Mindfulness to Help You Provide the Best Possible Care
Mindfulness-Based Dementia Care
A Positive Feedback Loop
Summary
Chapter 2: Finding Out for Yourself: Practicing Mindfulness
Some Formal Mindfulness Practices to Start With
Only Five Minutes
Resourcing with the Breath
Getting into the Habit
“Tiny Habits”
The Sitting Habit
How to Practice Mindfulness
Misconceptions About Mindfulness
“I Can’t Stop My Thoughts”
“A Few Minutes Is Good Enough”
“I Just Imagine I Am in a Meadow”
“I Feel Worse When I Meditate”
“I Paint—That’s My Meditation”
Eight Attitudes
Nonjudging
Patience
Beginner’s Mind
Trust
Nonstriving
Acceptance
Effort
Self-Compassion
Setting Up Conditions for Practice
Daily Routine
A Teacher to Guide You
A Community to Support You
Summary
Teachings
Practices
Chapter 3: Being with Grief
Your Grief
Three Types of Grief
Ambiguous Loss and Disenfranchised Grief
Anticipatory Grief
The Loss of Your Old Life
Grief Milestones
How Do You Grieve?
Intuitive
Instrumental
Blended
Learning from Zen Hospice
A Family Affair
Grieving Together
Modeling Acceptance
Outside of the Family
Supporting the Person with Dementia
How Grief Manifests
Being with the Other One’s Grief
The Power to Choose
“Sitting With”
Summary
Teachings
Practice
Chapter 4: From Caregiver to Care Partnering
The Problem with “Caregiver”
The Positioning Trap
What It Does
Explore: Repositioning
Care Partnering
The Need to Be Useful
A Need That Does Not Disappear
Shrinking Abilities
How You Can Help
Two More Mindfulness Practices
1. Mindful Walking
2. Sweeping the Body
Benefits
Wanna Breathe Together?
1. Mindfulness and the Dementia Brain
Challenges
Opportunities
2. Implications for Practice
Summary
Teachings
Practices
Chapter 5: Coming to Your Senses
The Dementia Brain and Sensory Input
Different Causes of Sensory Imbalance
Overstimulation
Understimulation
Consequences of Sensory Imbalance
Common Behaviors
Functioning
Getting It Just Right
Sensory Awareness and Dementia Care
Cultivating Sensory Awareness
Caring with Our Senses
Sounds
Seeing
Touch
Spatial
Temperature
Smell
Three More Sensory Awareness Practices
During Meals
More Than Just Food
Like Before
From Market to Table
A Social Experience
Assisting with Meals
Summary
Teachings
Practices