E.S.PKU Announces New PKU Guidelines Working Group at 26th Annual Meeting

E.S.PKU Announces New PKU Guidelines Working Group at 26th Annual Meeting PR Newswire LIVERPOOL, England, October 19, 2012 LIVERPOOL, England, October 19, 2012 /PRNewswire/ -- New initiative to develop much needed European guidelines for the optimal treatment of PKU is announced The European Society for Phenylketonuria and Allied Disorders (E.S.PKU) is welcoming more than 400 participants to thits 26 Annual Meeting from 18-21 October 2012. The event is a unique forum for patients, carers and healthcare professionals to drive initiatives forward together with the objective of improving the management of Phenylketonuria [1](PKU) across Europe. "2012 was a significant milestone for us with the launch of the first PKU benchmark report Closing the Gaps in [2]Care at the European Parliament in Brussels on Rare Disease Day. The first step to addressing the gaps in care was [*]to develop a consensus paper calling for a European gold standard in screening, treatment and monitoring across Europe. This paper, calling upon health professionals to establish guidelines in the optimal care of PKU, is currently being prepared for submission to a peer-reviewed publication. This progress could not have been achieved without the strong collaboration of all our members. This year, we will be building on that momentum through the launch of a new working group dedicated to developing guidelines for the optimal treatment of PKU," said Eric Lange, President of E.S.PKU, and Chair of the Meeting.